Getting Diagnosed with a Rare Cancer: Myelofibrosis | Mary’s Story | The Patient Story

Mary L. is a retired career nurse who now works as a CEO for a non-profit. The last few years of her life have changed course, and it all began with symptoms of something that remained undiagnosed for months and months. Her first red flags were fatigue and dizziness, both of which were extreme. In this segment, Mary shares more about what finally got her to her diagnosis of myelofibrosis, including misdiagnoses of other myeloproliferative neoplasms (MPNs) like essential thrombocythemia and polycythemia vera. She also talks about having to be her best advocate, switching doctors when she felt it was important. Thank you for sharing your story, Mary! In this Series: Our 3-part series with Mary covers everything from getting diagnosed with a rare cancer (this video), the ups and downs of going through myelofibrosis treatment, including Pegasys and hydroxyurea, and the impact of living with a rare cancer. Videos: Getting diagnosed with a rare cancer (this video) Myelofibrosis Treatment & Side Effects (Pegasys, Hydroxyurea) :    • How I Got Through Cancer Treatment & Side ...   Living with a rare cancer (myelofibrosis):    • Living with a Rare Cancer (Myelofibrosis) ...   Full story & transcript → Updated Soon at www.ThePatientStory.com Join Our Community: Website : https://www.thepatientstory.com/ Facebook: @ThePatientStory Instagram: @ThePatientStory Twitter: @patient_story ______________________________ The interview has only been edited for clarity. Contents of this video: 00:00 - Intro 00:45 - TITLE: Mary's Introduction 02:32 - TITLE: The 1st symptoms 05:05 - TITLE: Feeling Vertigo 07:12 - TITLE: Waiting for results 09:04 - TITLE: Dealing with the wait to start treatment 14:51 - TITLE: Seeking a second opinion 16:50 - TITLE: Guidance on the path to diagnosis and treatment ______________________________ #thepatientstory #myelofibrosis #rarecancers #patientstories #cancerstories #cancerpatient #cancersurvivor #MPN #myeloproliferativeneoplasms #MF #ET #PV #bloodcancer