Lived Experience of BBS Panel - Small Steps, Big Difference
Bardet-Biedl Syndrome UK
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Lived Experience of BBS Panel - Small Steps, Big Difference
36 просмотров · 10 дней назад
Bardet-Biedl Syndrome UK
376 подписчиков
36 просмотров · 10 дней назад
Graeme Roache, Emmy Anstee, Jackie O'Brien, Samantha Newman and Alisha Saleem are interviewed by Chair of BBS UK Emma Hughes. They share their own lived experience of Bardet-Biedl syndrome (BBS), covering perspectives from adults living with the condition, to a parent and an older sibling.