PV Update: Bloodwork Results, Besremi at 5 Weeks & JAK2 Testing
Matthew Mesler
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PV Update: Bloodwork Results, Besremi at 5 Weeks & JAK2 Testing
259 просмотров · 9 дней назад
Matthew Mesler
250 подписчиков
259 просмотров · 9 дней назад
Hello everyone,
In today's PV Chapel update, I share the results of my recent bloodwork and discussions with my care team.
Topics covered in this video include:
✅ Comparing my latest bloodwork to previous labs✅ Continuing the five-week Besremi dosing interval✅ Future JAK2 V617F allele burden testing planned for December✅ Why my care team is taking a long-term approach given my clotting history✅ Questions that were answered at this appointment✅ Questions that still require more time and investigation✅ Learning to live with uncertainty while continuing to move forward
One lesson that really stood out to me after this appointment is that not every lab result gets immediately solved.
Sometimes appointments answer questions.
Sometimes they create new questions.
And that's normal.
As always, this channel shares my personal experience living with Polycythemia Vera (PV), portal vein thrombosis (PVT), and treatment with Besremi. I am not a medical professional, and nothing in this video should be considered medical advice. Please speak with your healthcare team regarding your own medical situation.
Thank you for being part of the PV Chapel community.
Sempre Avanti. Mai Indietro. 🇮🇹❤️
Always forward. Never back. 🙏🩸
#PolycythemiaVera #Besremi #JAK2 #MPN #PVChapel #jak2mutation