Future Planning: Guardianship & Financial Considerations for SETBP1 Families

Planning for the future can bring many questions for families of children with SETBP1, especially when it comes to guardianship, financial planning, and protecting your child’s interests into adulthood. In this webinar, Texas attorney Carly Maderer discusses important considerations for SETBP1 families as they plan for their children’s future. Carly’s practice focuses on guardianship, estate planning, and special needs planning, and she is a member of the Academy of Special Needs Planners. She is also a parent of a child with Dup15q, a rare chromosome disorder, giving her both professional and personal insight into the unique considerations families of children with rare genetic conditions may face. Topics discussed include: • Guardianship and alternatives to guardianship • Special Needs Trusts • Wills and trusts • Powers of attorney • Medical directives • Protecting your child’s interests as they transition into adulthood • Other important considerations for long-term planning This webinar includes a Q&A with SETBP1 families and is intended to provide general educational information. Families should consult with qualified professionals regarding their own individual legal, financial, and planning needs. Learn more about SETBP1 Society at https://setbp1.org/