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The Rash Was A RARE and AGGRESSIVE Blood Cancer "I was STUNNED!" (BPDCN Diagnosis)

The Patient Story

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The Rash Was A RARE and AGGRESSIVE Blood Cancer "I was STUNNED!" (BPDCN Diagnosis)

211 024 просмотра · 11 дней назад
The Patient Story
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211 024 просмотра · 11 дней назад
Jim shares his BPDCN (Blastic Plasmacytoid Dendritic Cell Neoplasm) story, from a persistent rash that dermatologists initially said was nothing to a diagnosis of this rare and aggressive blood cancer. He explains why he sought second opinions at Dana-Farber and MD Anderson before starting treatment, and Dr. Pemmaraju joins to break down what BPDCN is, why it's often missed at first, and the newest FDA-approved treatments, tagraxofusp (TAG) and pivekimab sunirine (PVEK). Jim also walks through reaching remission, finding a stem cell transplant match, and what recovery looked like. ➡️ Hear more on BPDCN from Dr. Pemmaraju here 🔗 https://tinyurl.com/5xuzsphc Blood Cancer United 🔗 https://tinyurl.com/27yutnpf Thank you, Jim and Dr. Pemmaraju for joining us for this conversation. Thank you to AbbVie for its support of our patient story. The Patient Story retains full editorial control over all content. #cancerpatient #cancersurvivor #patientstories #thepatientstory #cancertreatment #cancerprevention #cancersymptoms The Patient Story: The Patient Story is led by a dedicated team of medical, editorial, and video experts, committed to authentically portraying the cancer patient experience. Sharing your story holds transformative power, culturally and personally. We handle each narrative with utmost care, compassion, and scientific rigor. Our editorial process adheres to the highest journalistic standards, ensuring medically researched, vetted, and fact-checked content. Backed by experienced medical professionals, we offer insights into the latest medical advancements. Beyond patient narratives, we provide comprehensive coverage of cancer news and medical resources. From symptoms to clinical trials, insurance, finances, and support groups, we offer guidance in a humanized manner. Chapters: 00:00 – My BPDCN Diagnosis: First Symptoms Itchiness and a Rash 2:27 – Diagnosed with BPDCN After Dermatologist Visits 5:20 – Finding BPDCN Specialists at Dana-Farber and MD Anderson 9:18 – Choosing a Treatment Center and the Value of a Second Opinion 11:44 – BPDCN Treatment Options: TAG and PVEK 14:21 – Reaching Remission and Finding a Stem Cell Transplant Match 17:06 – Transplant Recovery and Life at Home in Remission Join Our Community: Sign up for our FREE website: https://thepatientstory.com/ Facebook:   / thepatientstory   Instagram:   / thepatientstory   Twitter:   / patient_story   TikTok:   / patientstory