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(Part 2 of 2) Overcoming Two Rare Diseases - EDS (Ehlers-Danlos Syndrome) & PP (Periodic Paralysis)

Periodic Paralysis Association

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(Part 2 of 2) Overcoming Two Rare Diseases - EDS (Ehlers-Danlos Syndrome) & PP (Periodic Paralysis)

1 233 просмотра · 5 л. назад
Periodic Paralysis Association
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1 233 просмотра · 5 л. назад
Paul continues his story of battling two rare diseases - Ehlers-Danlos Syndrome and Periodic Paralysis. Both conditions have their own set of challenges; but Paul and his Mom persevere by finding the PPA and it's conferences where they learn of others with the same condition and tools to help Paul's quality of life. This is Part 2 or 2 of Paul's story, you can watch Part 1 here [URL to come]. #PeriodicParalysis #EDS #RareDisease Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at https://www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with questions about the condition. For more information on Strongbridge Biopharma®, please visit: https://www.strongbridgebio.com. You can also donate at https://www.periodicparalysis.org/donate Your donation will help with Dr. Cannon's genetic research or a list of other extremely helpful options. The great thing is you can decide how you want your donation to be used. ________________________________________ Connect with us on social: Facebook:   / periodicparalysisassociation   Instagram:   / periodicparalysis   ________________________________________ If you liked this video, please hit the like button, subscribe to our channel and hit the bell button to receive future videos. #PPA #paralyzed #Ehlers-Danlos #Diagnosis #GeneticTesting #ARareAdventure