Daisy’s Story: A Family’s Journey with Rare Epilepsy

Daisy is 19 months old and lives with a rare epilepsy condition called SCN2A. This affects how a channel in her brain has developed, leading to seizures and developmental challenges, including limited vision. Despite these challenges, Daisy loves music therapy and spending special short breaks with her family at the hospice. In this video, we sit down with Daisy’s parents, Gareth and Jade, as they share their family’s journey and talk about the support they receive from Bluebell Wood.