Mummy and daughter date with my disabled child
ParentXP
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Mummy and daughter date with my disabled child
11 125 просмотров · 1 год назад
ParentXP
10,9 тыс. подписчиков
11 125 просмотров · 1 год назад
It's a mummy daughter date with my disabled daughter, we are off to Boots to get her Alimemazine, a medicine for excessive vomiting, as well as doing some shopping for mum. I need new work trousers and a pair of white trainers. It's always interesting combining errands with a child with complex needs, making sure I can feed her through her gtube, and keep speaking to her and interpret her non-verbal communication cues.
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other. And I share what life is like for a single, midlife mom who always juggles too much. Organisation tips, perimenopause, and coparenting.
Elin’s medical procedures playlist: https://bit.ly/2HhKFsE
Tips and tricks playlist: https://bit.ly/2ugfoy1
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