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ALD No Limits - The POOP Episode

Christie & Ken ALD - No Limits

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ALD No Limits - The POOP Episode

107 просмотров · 7 дней назад
Christie & Ken ALD - No Limits
279 подписчиков
107 просмотров · 7 дней назад
In this episode of ALD No Limits, Christie and Ken sit down for an open, honest discussion about living with adrenoleukodystrophy (ALD) and the often-overlooked bowel challenges that can come with the disease (including in adrenomyeloneuropathy/AMN). They share experiences, practical insights, and tips for managing symptoms while emphasizing that nothing is off the table when it comes to supporting the ALD community. adrenoleukodystrophy, ALD, adrenomyeloneuropathy, AMN, bowel issues, bowel dysfunction, constipation, incontinence, rare disease, living with ALD, ALD symptoms, ALD management, ALD No Limits, Christie and Ken, ALD community, rare disease awareness, myelin, X-linked ALD, adult ALD, patient stories, caregiver tips, GI issues, pelvic floor, ALD bowel, rare genetic disease