I’m So Tired of Trying to Get Better | Chronic Illness Vlog
Dynamic Vibrance
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I’m So Tired of Trying to Get Better | Chronic Illness Vlog
259 просмотров · 3 недели назад
Dynamic Vibrance
495 подписчиков
259 просмотров · 3 недели назад
Another drive to Denver. Another medical appointment. Another round of explaining my body, waiting for answers, and trying to navigate the weird red tape that comes with chronic illness.
This time, I went in for a hypermobile Ehlers-Danlos syndrome (hEDS) evaluation. I met the clinical criteria, but because I also have an acquired autoimmune/connective-tissue disease, my diagnostic pathway required family-history criteria that I couldn't meet — so I left with a diagnosis of Hypermobility Spectrum Disorder (HSD) instead.
The frustrating part? The treatment is essentially the same.
And I think that's what this vlog ended up really being about: not one diagnosis, but the sheer exhaustion of trying to get better.
Drive. Appointment. Testing. Waiting. Results. Another appointment. Another drive. Repeat.
By the end of the day, I was so depleted and overstimulated that figuring out where to get something to eat felt like an impossible task — which might honestly be the most accurate representation of chronic illness life in this entire video.
If you're living in your own version of medical Groundhog Day right now, I hope this makes you feel a little less alone. ❤️