TWC 2025: Navigating the Diagnostic Odyssey

Rare and undiagnosed diseases affect over 30 million people in the United States and over 450 million people globally. Unfortunately, most of these diseases are associated with several years of diagnostic odyssey, resulting in a huge psychosocial and financial burden on the patients and their families. In this session, the speakers will cover a broad overview of undiagnosed diseases and rare diseases, which will set the stage for discussion on this topic and for families to share their experiences. Speakers: Bharatendu “Bharat” Chandra, MBBS, MRCP, FAMS Moon Ley Tung, MBBS, MRCP, FRCPath; University of Iowa Health Care - Stead Family Children’s Hospital Powerpoint Presentations available here: https://www.askresource.org/filesimag... https://www.askresource.org/filesimag... ASK Resource - (Access for Special Kids) Resource Center is a parent training, information, and advocacy center for families of children with special needs across the state of Iowa. ASK is a family-driven 501(c)(3) non-profit organization. Learn more http://askresource.org/about-ask/ Contact us - http://askresource.org/contact/ Website - http://askresource.org Facebook - www.facebook.com/askresourcecenter Instagram - www.instagram.com/ask_resource_center Linked-In – www.linkedin.com/in/ask-resource-center/