Hayley Okines talks to Miss skOOm

Hayley Okines suffered from the rare ageing disease Progeria. In this previously unpublished interview, she tells Miss skOOm what it's like living with the rare condition, her biggest dreams, and meeting Justin Bieber. Sadly, Hayley died on April 2nd 2015 of complications from pneumonia, aged 17. Miss skOOm played at her funeral with Hayley's younger sister, Ruby. Still photographs by: Miss skOOm & Jason Fry. Video footage shot by: Kerry Okines.