Sanfilippo Syndrome Explained with Noelle Pacl || Full Interview

Please note that this video was recorded on December 12/07/21. This was my first solo interview and I was NERVOUS! We experienced some connectivity issues, but t it was still an incredible conversation. Grateful to Noelle for taking time out of her busy day to come chat with me. I hope you enjoy the episode. Noelle Pacl is a mom to three children. After giving birth to twins Noelle and husband Billy started to notice one twin; Logan, was developing slower than his brother. At 1.5 years old Logan was diagnosed with Sanfilippo Syndrome; a terminal and degenerative disease. As children with Sanfilippo Syndrome age they begin losing the skills that they once had such as their speech and motor skills. Noelle joins me to talk about raising her son Logan who is now 14 years old. We talk about Logan's developmental path, their favorite thing to do together and how Noelle navigates her everyday life. Noelle and family are no longer on TikTok, but you can find them on instagram @love_logan07 For more information about Sanfilippo Syndrome you can follow: ‪@CureSanfilippoFoundation‬