Dhia Amanda's Story | Because It's Rare, We Care

In September of 2025, a 6-year-old girl named Dhia Amanda was brought to our attention via Free Malaysia Today. This little girl was diagnosed with a severely rare genetic disease known as "GNA01", a disorder that triggers false electrical impulses in the brain that led to issues with her movement, speech and communication. Uncontrollable spasms and dystonia (stiffening of the body) was all her life had been. The only cure available to treat this disorder is a high-risk surgery known as Deep Brain Stimulation. A chip costing RM150,000 was inserted into her brain which has drastically if not completely eradicated the false impulses, giving Dhia Amanda a chance to continue on without pain. All in all, Suriana Welfare Society successfully raised RM311,000 for her surgery and after-care. After Dhia Amanda's success story, Suriana embarked on a deeper journey into helping rare disease sufferers in Malaysia, for individuals and their families, caregivers and loved ones.