My Spinal CSF Leak- BIGGEST NEWS YET!! // Choosing between CT MYELOGRAM vs. Non-Targeted BLOOD PATCH
Momming with Migraine
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My Spinal CSF Leak- BIGGEST NEWS YET!! // Choosing between CT MYELOGRAM vs. Non-Targeted BLOOD PATCH
6 250 просмотров · 3 года назад
Momming with Migraine
38,7 тыс. подписчиков
6 250 просмотров · 3 года назад
This girl's medical diagnosis story just got a whole lot better: we've scheduled an epidural blood patch procedure as my first spinal CSF leak treatment! I have the choice between getting a CT myelogram and getting a blood patch, and this video explains the rationale for each of those routes.
A CT myelogram procedure is still on the table if this blood patch does not work, because of perineural cysts in my cervical spine that have a high chance of being CSF venous fistulas. I'm going less risky first with the blood patch. My epidural blood patch will technically be a blind blood patch, but it won't be completely blind because there ARE signs of a CSF leak on my spinal MRI. We have areas of interest, we just can't see a hole. We'll see how this goes, then re-evaluate the need for a CT myelogram.
In the meantime please wish me luck with my CSF leak treatment!
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SOME PREVIOUS VIDEOS…
Dr. Phil Show - Medical Gaslighting: • Видео
Dr. Phil Q&A: • Видео
The LATEST: My Spinal CSF Leak Evaluation (2022-2023)
○ POTS vs. Spinal CSF Leaks: • Видео
○ NEW MRI Findings! • Видео
○ Joint Hypermobility: • Видео
○ NUCCA & CCI: • Видео
○ Fascial Counterstrain (for IIH & more): • Видео
○ A POTS Episode Explained: • Видео
○ POTS Care Q&A- part 1:: • Видео
○ POTS Care Q&A- part 2: • Видео
FINDING OUT I WAS MISDIAGNOSED (2021)
(and getting diagnosed with IIH/pseudotumor cerebri)
○ Am I Misdiagnosed?: • Видео
○ CSF Leak Diagnosis Update: • Видео
○ 48-hour Flat Test Vlog: • Видео
○ After Medical Gaslighting: • Видео
○ Sick Day Vlog & Canceled CSF Appt: • Видео
○ Diagnosis Story Update: • Видео
○ Diamox for IIH: • Видео
○ Getting OFF Diamox: • Видео
○ Passing the Tilt Table Test: • Видео
○ Advice for Patients: • Видео
○ On Invisible Illness, pros/cons: • Видео
○ What Fainting Feels Like: • Видео
○ Open Letter to Demi Lovato (“diabetic” ice cream): • Видео
○ Vestibular Therapy: • Видео
○ Ginger for Migraine Relief: • Видео
○ My Food Triggers: • Видео
○ Nausea Relief: • Видео
○ Migraine Life Modifications: • Видео
○ Harry Potter Sorting (Jen vs Migraine Jen): • Видео
○ Migraine Hacks (Migraine Jen Vlog): • Видео
○ Buddy & Baby A’s First Year Together: • Видео
○ Buddy’s Pet-to-Service Dog Story: • Видео
○ Service Dog Training, Basic Commands: • Видео
○ Choosing Service Dog Gear: • Видео
○ POTS Service Dog Task- DPT: • Видео
○ Service Dog Response, Episode Story: • Видео
○ Types of Working Dogs: • Видео
○ Need vs Want a Service Dog: • Видео
○ Time Required for a Service Dog: • Видео
○ Service Dog Misconceptions I Had: • Видео
○ We Tried Training with a Prong Collar: • Видео
○ Buddy’s “normal dog” Tricks: • Видео
○ Walk Rules when Off-Duty on a Hike: • Видео
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NOTE: Though I talk about medical topics, nothing on my channel is meant as medical advice (for all statements, past or future). I am a patient sharing my personal experiences, but I am not a doctor nor am I medically trained. My channel is for entertainment and community only.
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