Jamie Sullivan, MPH

Data to Discovery : Modernizing Healthcare Data and Clinical Trials to Accelerate Rare Disease Diagnosis and Treatments October 14, 2026 __ A Rare Disease Congressional Caucus is a forum for Members of Congress to collaborate on ideas to improve the health and lives of rare disease patients and family members by facilitating conversations between Congress, the scientific community, and patient communities; building support for legislation to address barriers and challenges; and serving as champions of the rare disease community in Congress.