Ep 11: The Mast Cell Diseases Patient Registry - With Dr. Shonna Snyder of TMS

New Patient Registry for Mast Cell Disease Research Dr. Shonna Snyder, Research Scientist with The Mast Cell Disease Society,  joins Candice and Rachel to explain the new mast cell disease patient registry and why it could be a major step forward for research and care. The conversation covers what a registry is, who can join, how data privacy is protected, and how patient-reported information may help researchers uncover patterns across mast cell diseases including Mast Cell Activation Syndrome (MCAS), Hereditary Alpha Tryptasemia (HaT), and Systemic Mastocytosis. Dr. Snyder also shares her own rare disease journey and how it shapes her approach to this project. For more information about the registry and to start your own profile visit https://tmsforacure.org/registry/ For more information about International Mastocytosis and Mast Cell Disease Awareness Day, follow along with the event at https://mastocytosis-mcas.org/about-a... *Find all our links on our *https://linktr.ee/MastCast