Paget's disease in the family

Anne shares how participating in Paget’s research led to her diagnosis of Paget’s Disease of Bone. What started as a simple decision to contribute to a research study turned into a pivotal moment that confirmed Paget’s disease was part of her genetic heritage. This journey not only gave Anne a deeper understanding of the condition but also inspired her to encourage family members to take part in the research. She has since become a passionate advocate for the vital role research plays in identifying and managing hereditary conditions. By sharing her story with Prof Stuart Ralston for Paget's Awareness Day 2025, Anne hopes to inspire others to participate in medical studies and seek answers about their health, particularly when a condition may run in their family. The 2025 Paget's Awareness Day focuses on the timely diagnosis of Paget's disease. This video was produced by the Paget’s Association, a charity dedicated to Paget’s Disease of Bone.