PFIC Research Consortium Project Presentation

Introducing the Consortium for Patient-Centered Research on PFIC! In this session from the 2026 PFIC Family & Scientific Conference, Melissa Kochanowsky, Associate Director of Programs at PFIC Network, and Gitta Lubke, Science Advisor and Co-Lead of this PCORI-funded project, introduce the newly launched Consortium for Patient-Centered Research on PFIC (CPRP). This multi-stakeholder consortium brings together patients, families, clinicians, and researchers to build the infrastructure for comparative effectiveness research on PFIC — with a research agenda shaped by the priorities of the patient community. Learn more and get involved: https://consortium.pfic.org/ PFIC Network is a 501(c)(3) nonprofit supporting patients and families affected by progressive familial intrahepatic cholestasis(PFIC). Learn more: https://www.pfic.org/