Losing a nurse

Sunday, August 9, 2015 Life is hard enough but when You get help, and lose help, and get help again, then lose help... it messes up your ability to ever rely on that help. I was upset this particular day because a nurse that we really liked, basically just disappeared and never showed up or called. It just added to the pile of things that I've been worried about. About my channel....... My middle son, Daniel John Hasselberger was born on November 22, 1997, with a rare brain deformity called Polymicrogyria. The deformity happened due to a virus called CMV, or cytomegalovirus. He has seizures, respiratory problems, can only eat by g tube, is in a wheelchair, can not speak, and has had countless surgeries and hospitalizations over his 17 years. We are a family of 5 from Sandy Hook, CT and this is our journey. Every day is full of new things that we don’t expect. I am Julie, Daniel’s Mom. I left my full time career as an HR Director 11 years ago because Daniel needed me. The struggle, the sacrifices, the sibling love, and miracle after miracle. Why did I create this channel? For support, to help other families dealing with the same diagnosis, to help me cope with depression and isolation, etc. Julie Hasselberger Subscribe to this channel    / @jhasselberger   My blog site about life with Daniel http://www.raisingdanielhasselberger.... twitter @jhasselberger Instagram jhasselberger facebook Julie Hasselberger WE LOVE MAIL!!!! Julie Hasselberger PO Box 3611 Newtown, CT 06470 ~-~~-~~~-~~-~ Please watch: "HANGING BEACHBALL"    • HANGING BEACHBALL   ~-~~-~~~-~~-~ #caregiver #specialneeds #familyvlogs #disabled #juliehasselberger #inspire #disabledchild