#62- Is the healthcare experience keeping genomic medicine out of reach?

In this episode, Megan Johnson discusses the disparities in genomic healthcare, focusing on how healthcare experiences influence participation and trust, especially among underrepresented groups. She explores the genomic healthcare disparity cycle, the importance of diversity in genetic research, and strategies to improve patient engagement and understanding.   Key words: genomic healthcare disparities, underrepresented groups, healthcare experience, genetic research, trust in medicine, diversity in genomics, patient engagement, healthcare access, genetic counseling, health equity   Key Topics: • The genomic healthcare disparity cycle and its impact • Importance of diversity and inclusion in genetic research • Role of healthcare providers in improving patient trust and understanding • The influence of social determinants on access to genomic healthcare • The potential of community-based research and primary care integration • Steps to address systemic barriers and improve health equity   Guest bio: Megan is a clinical genetic counselor who helps patients and their families understand and make decisions around complex genetic information. Her research into how healthcare experiences shape genomic healthcare disparities grew out of a long-standing commitment to equity, one that took root growing up in a rural community with limited access to specialized care. She's dedicated to making genetic counseling accessible and meaningful for patients of all ages.   Resources related to today’s topic: • Johnson, M.D., Hite, A., Richmond, J. et al. Healthcare experiences and the cycle of genomic healthcare disparities: A cross-sectional study utilizing the ‘All of Us’ research program. J Community Genet 17, 88 (2026). https://doi.org/10.1007/s12687-026-00... • All of Us Research Program from the National Institutes of Health (https://www.nih.gov/allofus)   Give your feedback and help shape All Access DNA! Take our listener survey here: https://forms.gle/x82MKLRftpKH987s7   Sign up for our newsletter here: https://www.allaccessdna.com/newsletter   Please subscribe to this podcast on Apple Podcasts, Spotify, YouTube or wherever you get your podcasts to stay updated on new episodes of All Access DNA. Listen to past episodes on your favorite podcast play by searching “All Access DNA” or by streaming from our website at allaccessdna.podbean.com (http://allaccessdna.podbean.com)   Any inquiries on the podcast can be sent to AllAccessDNA@gmail.com (mailto:AllAccessDNA@gmail.com)   Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any questions you may have regarding your health.   The All Access DNA team includes: host, producer and editor Kate Wilson. The logo is designed by Designs by NKJ. Our Social Media Lead is Aryanah Estinvil