Patients get paid for their expertise

0Voice — from rare-disease roots to now including common conditions. Wes shares his 40+ years in market research, why paying patients leads to better treatments and better data, and how Rare Patient Voice protects privacy and builds trust. Built on 4 values: be a good resource for patients, a good partner to clients, a good employer, and a good citizen. We cover why patients aren't subjects — they're experts — how to stay safe in studies, and what's next for global patient engagement, plus Wes's stories from Edinburgh to walking Ace and Stanley.Follow Rare Connection for rare disease awareness, research updates, faith and family.#RarePatientVoice #PaidResearchStudies #ClinicalTrials For awareness and education only, not medical advice. Chapter Markers 00:00 Intro 01:31 Why Wes Started Rare Patient Voice 04:28 Getting To Know you 14:31 Finding People 20:32 Why Patients Voices Matter 25:57 Privacy & Ttust 30:58 Paying Patients For Their Expertise 35:25 Research VS. Clinical Trials 39:36 Accessibility 44:47 Protecting Yourself 47:21 Looking Forward 54:16 Closing