Dazodalibep vs. Nipocalimab: Patient Perspectives on Sjogren's Clinical Trials

What is it really like to participate in a clinical trial for Sjogren's disease? In this special roundtable session from the Virtual Sjogren's Summit, Dr. Kara Wada is joined by fellow patient and trial participant, Janet Steins, for a candid, unscripted conversation about their lived experiences in the Dazodalibep (Oasiz) clinical trial. Get an inside look beyond the scientific papers and press releases. Kara and Janet pull back the curtain on the entire process, sharing their personal stories and insights. In this honest discussion, you'll hear about: The initial decision-making process: "What do I have to lose?" The screening and enrollment process (including the frustrating hurdles!). The REAL time commitment and logistics of monthly infusions. Their surprising and hopeful results: improved saliva, energy, and reduced pain. Navigating the uncertainty of a double-blind, placebo-controlled trial. A heartfelt message for anyone considering joining a clinical trial. This is a conversation about hope, advocacy, and the incredible power of patients contributing to the future of Sjogren's treatment. Want to connect with a supportive community that understands? 🔹 Join the FREE Success with Sjogren's Sisterhood on Facebook! Share experiences, ask questions, and find your people.   / successwithsjogrens   Ready to dive deeper and become an expert in your own care? 🔹 Explore the Sjogren's Summit 4-Year Library! Get lifetime access to over 80 hours of expert presentations and patient panels covering every aspect of Sjogren's. https://www.sjogrenssummit.com/the-sj... Looking for personalized, in-depth care? 🔹 Discover the New Patient Packages at the Immune Confident Institute. Work with Dr. Kara to create a comprehensive, holistic plan tailored to your unique health journey. https://www.drkarawada.com/new-patien... CONNECT WITH DR. KARA Website → https://www.drkarawada.com/ YouTube →    / @drkarawada   LinkedIn →   / karawadamd   Instagram →   / immuneconfidentmd   Threads → https://www.threads.com/@immuneconfid... Facebook →   / karawadamd   TikTok →   / immuneconfidentmd   CHAPTERS 00:00 Intro 00:44 Janet's Background and Diagnosis 01:38 Getting into the Clinical Trial 02:59 Experiences and Challenges in the Trial 06:44 Screening and Enrollment Process 11:32 Trial Medications and Phases 18:12 Personal Impact and Reflections 27:13 Family History and Medical Advances 29:58 The Challenge of Diagnosing Seronegative Patients 31:13 Personal Experiences with Sjogren's Syndrome 33:41 Considering Clinical Trials: Advice and Insights 35:21 Navigating Clinical Trials: Expectations and Realities 43:12 The Importance of Networks in Managing Chronic Conditions 48:08 Concluding Thoughts and Encouragement