Portsmouth Golf Tournament To Spread Awareness For RARE Disease!

In this mini-episode of "Seacoast Stories," Taylor Hodge joins Troy Farkas to talk about the Oct. 12 golf tournament at Pease Golf Course in Portsmouth, N.H., an annual event that raises awareness for the rare Gorlin's Syndrome, a genetic disorder affecting the head, face, and jaw. Hodge's son, Nolan, contracted the disease as a baby, and now Hodge is devoted to raising awareness and funds for this disease that affects only 11,000 families in the United States. Today, Hodge talks about Nolan's experience with the disease, how it affects the family's daily life, when the idea for the golf tournament first hit the Hodge's, what the day will look like on Oct. 12, and more. To donate to the cause, click here: https://gorlinsyndrome.org/donate #portsmouthnh #nhl