OT and Ehlers-Danlos Syndrome: OT CEU Course with Emily Rich

Unfortunately, research on the lived-experience for those with Ehlers-Danlos Syndrome shows us that we as a profession need to be doing a better job. People with Ehlers-Danlos Syndrome report: • A lack of reliable information for themselves • Social stigma from peers. • Lack of awareness of EDS in the healthcare community As occupational therapy professionals, there is much we can contribute to supporting this population. And, today we’ll look at a self-management program that is grounded in behavior change theory and we co-designed with people with lived experience of EDS. We welcome back to the podcast, an occupational therapist who has EDS and also treats EDS clients in her clinical practice, Emily Rich, PhD, OTR/L. Emily and I will discuss self-management, along with assessment and treatment of EDS. Join the OT Potential Club to take a quiz to earn your 1.25 hours occupational therapy continuing education units (AOTA-approved): https://otpotential.com/ot-potential-... Website and Social: Episode page: https://otpotential.com/ceu-podcast-c... Podcast page: https://otpotential.com Linked In:   / otpotential   Episode article: Developing a self-management intervention to manage hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS): an analysis informed by behaviour change theory. https://www.tandfonline.com/doi/full/... Timestamps: 00:00:00 Intro 00:02:59 Quick intro to Ehlers-Danlos and Hypermobility Spectrum Disorder 00:05:04 Background on Behavior Change and Self-Management Programs 00:05:53 What was the intent of this research? 00:08:24 What were their results? 00:11:20 Author discussion/conclusion 00:13:04 Intro to Emily Rich 00:14:38 What Emily wants you to know about living with EDS 00:20:22 Emily's current clinical work and research interests 00:23:40 Article Impressions 00:30:35 When you are evaluating someone with EDS, what assessments do you typically use?00:36:04 What are some typical OT goals for someone with EDS? 00:41:33 What have you seen as some of the standard approaches for OT treatment? 00:45:04 What Emily sees as the future of EDS treatment 00:50:08 Setting-up our clients for self-management at discharge 01:00:06 Go-to resources that Emily recommends for education around EDS 01:04:16 Technologies Emily foresees being helpful for OT better serve people with EDS