I’M ALLERGIC TO THE SUN | living with Erythropoietic Protoporphyria (EPP) | my rare genetic disorder

I’M ALLERGIC TO THE SUN | living with Erythropoietic Protoporphyria (EPP) | my rare genetic disorder In this video I am talking about my rare condition, what it is, my experience growing up with it and a day to day process of a reaction. WARNING I will share photos which you may not wish to see especially if you’re squeamish! Please feel free to ask any questions below Xx