RARE REV-inar episode 026: Part 1 “Rethinking myasthenia gravis”

This is an excerpt from a longer webinar called “Rethinking standards of care in rare diseases: what we can learn from myasthenia gravis” which originally aired on 13th May 2026. This REV-inar was kindly sponsored by and developed with UCB. UCB had input in the topic of this webinar, choice of speakers and have reviewed the content in terms of accuracy and compliance with industry standards. As with all of our Rev-inars, opinions remain solely those of the speakers. This webinar is not intended to constitute medical advice. If you have concerns, regarding your own health please contact your healthcare provider for personalised advice. For the rest of the videos and the full webinar please visit www.rarerevolutionmagazine.com The discussion aims to bridge the gap between scientific progress and the everyday lives of those living with the condition, covering topics such as the socio-economic burden of the disease, optimizing patient care pathways, and developing policy recommendations. Speakers Nicola Miller: editor-in-chief and creative director at RARE Revolution (Host). Maria Bonaria (Maya) Uccheddu: patient advocate living with myasthenia gravis (MG), pharmacist, and digital artist. Professor Giuseppe Turchetti: health economist and professor at Sant’Anna School of Advanced Studies, Pisa, Italy. Vinciane Quoidbach: research project manager at the European Brain Council and lead of the "Rethinking Myasthenia Gravis" project.