RARE REV-inar episode 026: Part 1: Before diagnosis – early signs, red flags and delays

This is an excerpt from a longer webinar called “Mastocytosis: before, during and after diagnosis” which originally aired on 23/04/2026. Sponsorship for this RARE Rev-inar was provided by Blueprint Medicines as part of an arm’s length sponsorship agreement. Blueprint Medicines have had no control over the choice of speakers, curation of the webinar or it’s promotional materials. As with all of our Rev-inars, opinions remain solely those of the speakers. This webinar is not intended to constitute medical advice. If you have concerns, regarding your own health please contact your healthcare provider for personalised advice. For the rest of the videos and the full webinar please visit www.rarerevolutionmagazine.com Speakers: Shawna Hull, Shawna lives in Georgia, USA and lives with both cutaneous and systemic mastocytosis. She was diagnosed following a 12 year diagnostic odyssey. She volunteers as a group leader for TMS’s Work Life Support Group and online support groups. She also moderates a Facebook group for people with similar experiences. Dr. Polina Pyatilova is a dermatologist and physician–scientist in Berlin. Her work focuses on mast cell driven diseases, including mastocytosis and urticaria, with a strong emphasis on digital health, real-world evidence, and patient-centered care.