Kleefstra Syndrome Awareness Day 2020

We are proud to present RISE UP from the Kleefstra syndrome community. For KS Awareness Day we generally focus on achievements, milestones and proud memories - fantastic moments that are worth celebrating. But that doesn't tell the whole story... Please sit back and take a few minutes to appreciate the beautiful music performed by the very talented Ellie Bird - Big sister to Boo (KS). We are forever grateful for the content shared from our amazing families who continue to RISE UP, support and inspire. ** This video was intended to be impactful, highlighting the challenges and obstacles our KS families often face **