RARE REV-inar episode 027: part 4 Mastocytosis: the language of symptoms & disease

This is an excerpt from a longer webinar called “Living with mastocytosis” which originally aired on 26th June 2026. Sponsorship for this RARE Rev-inar was provided by Blueprint Medicines as part of an arm’s length sponsorship agreement. Blueprint Medicines have had no control over the choice of speakers, curation of the webinar or it’s promotional materials. This is our second in a series of 4 REV-inar running through 2026 on the topic of mastocytosis. Our panellists are Shawna Hull, Shawna lives in Georgia, USA and lives with both cutaneous and systemic mastocytosis. She was diagnosed following a 12 year diagnostic odyssey. She volunteers as a group leader for TMS’s Work Life Support Group and online support groups. Kelly Morlan lives in Texas, USA and also lives with both cutaneous and systemic mastocytosis As with all of our Rev-inars, opinions remain solely those of the speakers. This webinar is not intended to constitute medical advice. If you have concerns, regarding your own health please contact your healthcare provider for personalised advice. For the rest of the videos and the full webinar please visit www.rarerevolutionmagazine.com