Huntington's Disease Myth Busting Episode 1
HD Reach
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Huntington's Disease Myth Busting Episode 1
115 просмотров · 8 дней назад
HD Reach
141 подписчик
115 просмотров · 8 дней назад
Erika Boulavsky, LCSW, Community Outreach chats with Dr. Elliott Hayden, MD, PHD Duke Neurology Fellow busting through some Huntington's disease myths. Are they myths, just complicated, or not a myth?
In this episode, they address the following:
1. Is Huntington's disease solely a movement disorder?
2. If you have the gene expansion (gene positive), do you know when the disease will start?
3. Does everyone with Huntington's disease progress the same way?
4. Will you definitely have HD if you have a family history?
5. Is chorea the best way to tell how advanced their HD is?
6. Apathy means someone is depressed
7. There is nothing you can do to change your experience with HD
They go on some "tangents" by discussing Enroll-HD, CAG repeats, Anasognosia vs mental health vs Stubborn and some interventions to consider, communicating with a care team.
Please always remember that HD Reach is here to support you and your Huntington's disease journey. Feel free to reach out by comment, DM, or the more traditional means: info@hdreach.org, hdreach.org, 919-803-8128
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