My Journey with Endometriosis - cysts, surgeries, medication & medical trauma

Navigating the healthcare system as a woman with endometriosis - GPs, gynaecologists, endometriosis specialists, medication, surgery and more. After sharing my sister's story about her massive endometrioma cyst and the fact that she was sent away with a letter that she was to keep on her person in case the cyst burst (as it was deemed potentially life-threatening), I didn't realise it would resonate with so many of you! My sister has had a rollercoaster journey with her endometriosis, so I invited her to talk about it all - everything from her cyst to her diagnosis to HRT to now managing endo drug-free (with a little help from me)! 00:47 - the "large cyst" 26:53 - back to the start, getting diagnosed 38:10 - endo & the workplace 44:24 - thoughts on BSGE accredited endo centres 47:44 - birth control experiences 48:55 - mini pill drama 49:36 GNRH agonist Decapeptyl (chemical menopause) 52:57 - mirena coil drama 56:23 - back on birth control 57:32 - coming off medication: mindset & medical trauma 01:04:40 - the effects of elimination dieting 01:08:44 - what it means to have a sister with endometriosis For more content, find me on: Instagram: www.instagram.com/theendostasisproject TikTok: www.tiktok.com/@theendostasisproject Substack: www.subatack.com/@theendostasisproject #endometriosis #endometriosistreatment #endometriosissupport #endometriosissymptoms #endometriosissurgery #endometriosisdiet